Kevin Feinbloom was diagnosed with Stage 4 Esophageal Cancer in August 2013 during a routine check-up for what he thought was just an irritated throat. He immediately began an aggressive treatment plan at UCLA, under the care of some of the best doctors in the world. Kevin is married and has two high school age children. Kevin’s wife is a Breast Cancer survivor; she underwent a double mastectomy in January 2013. Kevin and his family reside in the Thousand Oaks area and are very humbled to be named a 2013 Recipient for the Mike Nosco Memorial Bicycle Ride.
Update: Kevin Feinbloom passed away in February 2015.
In April 2009, Andreas complained of pain in his left leg above the knee. He had been skiing and cycling a lot, so they thought it was an orthopedic issue. Andreas went to an orthopedic surgeon for x-rays and nothing was found. Four weeks of physical therapy, ice and ibuprofin were prescribed, followed by an MRI if pain hadn’t dissipated. Pain decreased, so they thought physical therapy was helping; when in fact, a tumor had broken out of the bone, which can relieve pain. Three weeks after seeing the orthopedist at a routine visit to their pediatrician, Andreas was advised to get an MRI. On July 6, 2009 the scan revealed a mass in his left distal femur; within 2 hours he was admitted to Children’s Hospital Los Angeles. On July 8th, at the age of 13, Andreas was diagnosed with metastatic osteosarcoma (bone cancer). A single, marble-sized tumor was also found and removed by thoracoscopy from his left lung. Andreas completed 6 MAP treatments, then had surgery to remove the tumor in his leg on October 2, 2009. The femur was replaced with a Compress prosthesis and artificial knee. Pathology was 75% necrosis; clear margins. 18 total chemo treatments were completed Feb. 28, 2010, with no evidence of disease(NED).
In June 2010, Andreas had a boating accident at camp. On July 5, 2010 he required a complete revision of the prosthesis. On September 14, 2010 his 6 month check-up scans revealed a tumor in upper left lung. Sept. 20, 2010 he had a thoracotomy; a total of 4 tumors were found, 3 in the pleural cavity; they were able to achieve clear margins. Treatment consisted of 10 rounds of chemo (Ifosfomide, Etoposide), the trial drug L-MTP-PE, and radiation to the lung. He completed: May 15, 2011- Ifos/ Etop, June 24, 2011- radiation, and L-MTP-PE- June 28, 2011. On July 16, 2012 – 15 month scans revealed a 2 cm tumor in his lower right lung. On July 22, 2012 Andreas had a thoracotomy; 2 tumors were found soo they did a lobectomy of his lower right lung; clear margins. He completed Gemcitabine/Docetaxel in January 2013 and in February began Hu3F8/IL-2 trial at MSKCC in New York.
Joni was diagnosed with Stage 2 Non Hodgkin’s Lymphoma. Joni and her husband, Mike, have followed the ride since it’s inception in 2008. Joni has followed Andreas Knickman’s courageous journey on his Caring Bridge website and has contributed when possible; she has been “blown away and inspired by that family!” Joni has praised the Mike Nosco Memorial Bicycle Ride – how it is honoring Mike Nosco’s life and helping people in our community; she never imagined that she would be in a position to be a to be a recipient. Joni spent more than 600 hours in the hospital having chemotherapy and was not able to be in her office, but did her best to work remotely. Joni finished initial treatments on May 3, 2013, but she still has monthly visits and quarterly scans. Joni was on her bike and rode in the 2013 Mike Nosco Memorial Bicycle Ride – Go Joni!!
Update: Joni Taylor has been a MNMBR Recipient Ambassador since 2016